Carers UK is an organisation devoted to helping and advising carers from all walks of life. They campaign for carers' rights, they provide informative newsletters, they keep us carers up-to-date with the latest developments in government legislation, benefits, etc.
You do not have to pay to join - they ask for an annual subscription but if money is tight (which is generally is!) you can have a free membership and still receive the newsletter.
I would recommend them highly - they also have a telephone helpline manned by very helpful and highly informed people who will provide you with tons of information and if there is something they don't know, they will point you in the right direction.
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To be told your new baby has Down's Syndrome is totally overwhelming. If you are lucky, you will have a circle of experts to support you - if you are not so lucky, it is a steep learning curve and can be confusing and frightening. I fell into the latter category, and now 22 years on would like to share information learned along the way with other parents who need a little extra support. If you have information of interest, please contact me at c_bletsis@yahoo.co.uk for inclusion in this blog.
Useful Links
- Baby Sign Language - Resources
- Benefits Hotline
- Carers UK
- CEA Card - carer's free entrance to cinema
- Down's Syndrome Association
- DownsEd/Sarah Duffen Centre
- Makaton Website
- Motability
- MyChoicePad - Makaton App for IPad
- National Portage Association
- Numicon Website
- Reading Educational Assistance Dogs
- Riding for the Disabled
- Stepping Stones Support Group
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- teeth (2)
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- telling time (1)
- toilet training (5)
- tongue (2)
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- transport (4)
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Followers
About Me
- Caroline B
- Hardworking mum/artist/knitter/dog owner, scraping a living doing what I love!
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