I still got a penalty fine notice from the NHS regarding my daughter's visit to the hygenist. Had a very unpleasant phone conversation with one of their operators who told me at one point 'Just because your daughter has Down's Syndrome doesn't meant she is entitled to free health care'. I beg to differ...
Whizzed off a letter the same day, enclosing copies of her ESA letter and the new HC2 form and complaining strongly about this guy's attitude on the phone, and got a letter back practically by return post saying they were closing this matter. Wish I could count on that - we shall see next time.
Why is everything always a battle?
skip to main |
skip to sidebar
To be told your new baby has Down's Syndrome is totally overwhelming. If you are lucky, you will have a circle of experts to support you - if you are not so lucky, it is a steep learning curve and can be confusing and frightening. I fell into the latter category, and now 22 years on would like to share information learned along the way with other parents who need a little extra support. If you have information of interest, please contact me at c_bletsis@yahoo.co.uk for inclusion in this blog.
Useful Links
- Baby Sign Language - Resources
- Benefits Hotline
- Carers UK
- CEA Card - carer's free entrance to cinema
- Down's Syndrome Association
- DownsEd/Sarah Duffen Centre
- Makaton Website
- Motability
- MyChoicePad - Makaton App for IPad
- National Portage Association
- Numicon Website
- Reading Educational Assistance Dogs
- Riding for the Disabled
- Stepping Stones Support Group
Labels
- about me (1)
- activities (1)
- All About Me book (1)
- animals (1)
- annual review meetings (1)
- art (2)
- Atlanto-Axial Instability (1)
- baby sign language (2)
- babyhood (1)
- bad behaviour (5)
- battles (1)
- behaviour (10)
- Bells Piece (2)
- benefits (7)
- buggies (1)
- Carers UK (2)
- careworkers (3)
- chew sticks (1)
- choking (1)
- Christmas (1)
- cinema (1)
- colds (1)
- communication (2)
- compulsive behaviour (1)
- contunuity (1)
- council tax discount (1)
- craft (1)
- croup (1)
- dentist (2)
- development (1)
- digestion (1)
- discrimination (1)
- doll (2)
- Down's Syndrome (2)
- dressing (1)
- eating (1)
- education (1)
- emotions (2)
- emplyment support allowance (1)
- entrance fees (1)
- ESA (4)
- exhaustion (1)
- eye contact (1)
- feeling unwell (1)
- food (3)
- forms (1)
- freebies (3)
- guilt (2)
- hair (1)
- HC2 form (3)
- health care (5)
- helplines (1)
- holidays (5)
- illness (1)
- incapacity benefit (1)
- Income Support (1)
- IPad (1)
- keeping up schooling during holidays (1)
- learned helplessness (2)
- Learning Support Assistant (1)
- learning through play (2)
- Looking a fool (1)
- Makaton (3)
- maths (2)
- Motability (1)
- muscle tone (2)
- nappies (2)
- neck weakness (1)
- Numicon (1)
- OCD (1)
- passport (1)
- periods (1)
- personal hygiene (2)
- praise (1)
- prescription fees (4)
- reading (2)
- Reception Class (2)
- respite care (4)
- Riding for the Disabled (1)
- routine (6)
- school (8)
- school holidays (1)
- school uniform (1)
- sensory toys (1)
- signing (4)
- sinuses (1)
- Special Care Dental Clinic (4)
- special school (2)
- speech (10)
- speech therapist (1)
- statements (1)
- Stepping Stones support group (1)
- stimulation (1)
- stomach upsets (1)
- summer holidays (1)
- Support Groups (1)
- teeth (2)
- teeth grinding (1)
- telling time (1)
- toilet training (5)
- tongue (2)
- transitions between schools/classes (2)
- transport (4)
- visual aid (1)
- welcome (1)
Followers
About Me
- Caroline B
- Hardworking mum/artist/knitter/dog owner, scraping a living doing what I love!
No comments:
Post a Comment